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10 June 2006 @ 01:14 pm
new  
hi i am new to this community, i have always been afraid to talk to people and have found it easier to commuicate through other means than speech. have decided in the last year to stop talking at all. my family doesnt understand and has basically turned their backs on me.
 
 
03 April 2006 @ 09:07 pm
It has gotten to the point that vocal communication is beginning to hurt me too much, so I'm no longer speaking. I know fingerspelling and some sign, so communicating to people won't be so hard for me. One thing this might be hurting, however, might be my relationship with my girlfriend. She prefers using vocal communication over text, and calls often on the phone. Sometimes, I'd have to force myself to speak to her, which only hurt me. Obviously, that is no longer an option for me. She is not taking it too well.

I'm not sure what will happen now...
 
 
Current Mood: discontentdiscontent
Current Music: Evanescence: "Whisper"
 
 
27 February 2006 @ 07:37 am
hi i'm alixx. after a long period of meditation and thoughtfulness, i have decided that i am not going to speak anymore. it has been more and more difficult to speak anyway lately, so i have made the decision to no longer make the effort. i am a member of a multiple system, and while there are others who can still speak, i have chosen never to again. another member of our system, ali, is severely autistic and can speak, but is very limited and usually only says one word sentences.

hope to get to know you all!
 
 
11 February 2006 @ 08:09 am
Hello, sorry for cross-posting and if I am breaking a rule, please forgive me as I couldn't find any rules against sharing - do not mean to be inappropriate. But we needed a place where we could share poetry, and couldn't find a Deaf Poetry community. So we started one, deafpoetry, if any of you are interested in sharing poetry. Thanks.
 
 
27 January 2006 @ 02:00 pm
G'day

My name is Ricky, I am 30 and it's my birthday next week :). I just found the community because lordalfredhenry friended me and I was looking at his communities list. And looking around here, I see that it is run by somebody who I already know! Hi, sarahemm, can I sing the "small world" song now? *grin*

Anyhow, about me. I have severe/progressive ME, a neurological disorder that is sometimes badly mis-named as "Chronic Fatigue Syndrome". Believe me, the chronic fatigue is the LEAST nasty symptom. If you are interested in ME, http://ahummingbirdsguide.com/ has great information.

I am bedridden completely now, and use a trackpad and on-screen keyboard to operate my computer. I can still talk usually, but I can not talk enough for long conversations, and the time I am able to talk for is getting shorter. I know that some people with ME can't talk at all, and it scares me silly.

Because I have so little use of my arms, sign language is not an option.

I am not sure if I will be so sick that I won't be able to speak at all, or even sure exactly what makes the speech difficult... I suspect that it comes back to energy, first to translate thought to words in my head, second physically moving the right muscles/etc to make sounds. If this is correct, I might end by having to use a picture board or something like that.

I already feel locked up in my head by having to stop talking so quickly. How do you deal with wanting to express things and not being able to?

Regards,
Ricky
[[ Please excuse odd mistakes or brevity, typed via on-screen keyboard ]]
 
 
Current Mood: curiouscurious
 
 
 
21 January 2006 @ 05:46 pm
Hi I'm Lydia. I'm 11 and I live in a multiple system. That means I share a body with some people. I'm mute. I never made a sound ever. The others in my system thought I was dumb and didnt have feelings. We started making our own sign langage. Then everyone in our system knew I can talk, just not with my mouth. Then the body was in sixth grade and we learned ASL with a dictionary. Then I got stuck in the body for a while. I only signed and wrote stuff cos I couldn't talk. Our mother was real mad and didn't learn sign and didn't read anything I wrote. So I went inside again. We moved to Hungary four years ago. I want to learn HSL nown. but the grown ups in our system are busy. We're in college.
 
 
16 December 2005 @ 01:44 am
Is non-verbal and non-vocal the same? I have been using verbal as the use of language using any phonetic-graphical lexicon. I figure that the various sign languages and picture-only/glyphic languages are indeed non-verbal by that definition though. So is all verbal english spoken? Sorry, I get pedantic and technical....not meaning to offend. Morse might be an unusual case but it uses a language with letters and spells out say "verbal content" (perhaps "textual" is better).

From The American Heritage® Dictionary of the English Language, Fourth Edition

Usage Note: Verbal has been used since the 16th century to refer to spoken, as opposed to written, communication, and the usage cannot be considered incorrect. But because verbal may also mean “by linguistic means,” it may be ambiguous in some contexts. Thus the phrase modern technologies for verbal communication may refer only to devices such as radio, the telephone, and the loudspeaker, or it may refer to devices such as the telegraph, the teletype, and the fax machine. In such contexts it may be clearer to use the word oral to convey the narrower sense of communication by spoken means.

:D

Ok, I get the gist of the community. I hope to join after reading a bit more.

BTW, I'm occasionally mute.
 
 
24 November 2005 @ 02:50 pm
I am a special education teacher for a private, nonprofit school that is primarily populated by autistic individuals who are seriously affected by the disorder-- they come to us typically because their district is, for whatever reason, unable to provide the necessary services, the students themselves are usually highly aggressive or non-compliant, and communication is a key factor.

Our program is highly individualized, but organized loosely on communication and functional abilities as well as IEP teams' projected living outcomes. The students I work with are mostly nonverbal and are learning basic PECS and AAC strategies. As a school, we are well-versed in intervention strategies and ADL (activities of daily living) instruction. What I particularly want to improve and enrich is the academics we offer.

So here comes the question(s) (I had gotten some information in a previous posting): as individuals with autism, what school experiences were most beneficial? What was the most difficult or non-useful? In hindsight, what would you have wanted to learn about or what would have been more beneficial to learn?

I know that what I am asking is somewhat vague, and for some may be too personal, and also that in a way I am asking individuals to represent a large group. I am in know way intending to offend.

Thank you.
 
 
Current Mood: curiouscurious
 
 
31 October 2005 @ 08:03 pm
*giggles* okay, i figured this community would be a little larger than it is... should do more advertising i suppose. not sure how many of us there *are* out there!
anyway... i'm curious, what methods do people here use to communicate when nonverbal? signing, written communication, technology-related-devices, whichever :o)
 
 
Current Mood: okayokay