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26 January 2008 @ 09:18 pm
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Hello.

I'm part of a group with DDNOS. We consider ourselves median. I don't take full control of the body often, but I'm frequently in partial control, and that's been causing some problems.

I'm not entirely non-verbal, but I seem to be losing my ability to speak. I have to struggle to form words. I can't speak at a normal volume. I usually have trouble understanding people. However, I am able to write and read.

When I have partial control, the person who is in control with me also has difficulty speaking and understanding, although not nearly as much as I do alone. I am hoping that the only solution is not for me to stay in back, as this is our most comfortable and--before now--functional arrangement.

For instance, we are taking a Latin class at the local university. I used to be responsible for our attendance and participation in that class. Now I can hardly understand what the professor is saying, and when I am in partial control, the other group member also struggles. We got mixed up recently; we couldn't understand the professor and could hardly speak. Luckily, it didn't last for too long, but it proved to us that something was very wrong. Now all I can do is the homework.

Does anyone here have advice?
 
 
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Volim što sam lezbejka zato što su žene lepepthalogreen on January 28th, 2008 03:45 pm (UTC)
that's one of (many) reasons why we aren't at university any more. We have auditory processing disorder (among other things) and many of us here are pretty non-verbal, ranging from "stutters a bit" to "has never uttered a word in her life". My sister and I are currently main front and sometimes it's more me and sometimes more her. I'm pretty non verbal and I also have problems understanding other people. My logic sort of breaks down and I can't figure out if it's because they are illogical or if it's because I'm just not good at people. One thing that I can do, when I don't understand anything (because my brain isn't processing the input at all) is type. It's like being in a chinese room. You hear sounds, and you don't understand them, but you know that this sound means type this letter and so I transcribe things for myself, which I can then later read. Also I can do simultaneous translation, but the information goes in the ear, out the mouth and I don't understand any of it. I just spent three days doing simultaneous translation because someone came from England to talk to our religious community and some people in our community don't speak English. I translated his every word into Hungarian, but now I couldn't tell you what he said.

So if it doesn't matter if you can't follow along in class (the teacher isn't going to call on you), and you can type fast, it can help to transcribe stuff for yourself. We did that for a while.

Also, if you are in America there are disability accomodations you can get. We couldn't get them in Hungary because Hungary isn't as advanced in that way.
shrimply on January 29th, 2008 09:42 pm (UTC)
Thank you. I will see if I can type in that way. It would be helpful. And if necessary, we'll keep in mind the accommodations, as we do live in America.